In a bid to help find a cure for motor neurone disease, a Launceston committee has donated $114,000 to the cause.
The money, raised through a gala ball and a Big Freeze event, will be used to fund research, clinical trials and support Tasmanians living with MND. Tassie Freezing for MND committee member Rick Fontyn said the group only formed last year.
“We held our first ball and big freeze in 2016 and raised $100,000.
We were completely overwhelmed,” Mr Fontyn said. “Last year, we sold the ball out in under a day.” Mr Fontyn said the community support had been phenomenal, with the events raising $215,000 in 18 months.
“We said at the onset that we will do something until there is a cure. All of us on the committee know someone that has suffered or is suffering from MND,” Mr Fontyn said.
The fundraisers have been heavily supported by Neale Daniher, who has attended both events in Launceston.
"We said at the onset that we will do something until there is a cure."
Motor Neurone Disease (MND) is the name given to a group of diseases in which the nerve cells (neurones) controlling the muscles that enable us to move around, speak, swallow and breathe fail to work normally and eventually die. With no nerves to activate them the muscles gradually weaken and waste.
It is also known as Amyotrophic Lateral Sclerosis (ALS) or Lou Gehrig’s Disease in the US, named after the famous American Baseball player who succumbed to the disease.
With no residual muscles or strength, MND patients are left motionless,mute, and trapped within their once active bodies. In the majority, the mind and intellect are left intact, with the sufferer bearing witness to it all.
The patterns of weakness and rate of progression vary from person to person, and while some people can live a long time with MND, the average life expectancy is 27 months from diagnosis.
For more information about MND, visit the Fight MND website
All money raised through Tassie Freeezing for MND, will be used to fund research, clinical trials and support Tasmanians living with MND.
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Fighting MND is a combined effort, take a look at what is happening on a national level.
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